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The Human Genome Project unlocked unprecedented opportunities for discovering underlying etiologies of human disease, including those that present early in life.ÌýIn this talk, Vasiliki Rahimzadeh will discuss the dual role of collaboration and harmonization in data governance as two avenues by which precision medicine can be realized among i) genomic data producers, ii) users and iii) regulators. She uses pediatric rare disease as a case example for exploring how ethical-legal bases of data privacy and security map onto, and evolve in line with new genomic possibilities informing the clinical applications thereof. She will conclude with thoughts on how through proportionate policy development can ensure genomics remains equity-enhancing and forward-looking as it tackles questions relevant for primary care delivery.

Vasiliki (Vaso) Rahimzadeh is a doctoral candidate with research interests at the intersection of bioethics, data governance and bioscience policy. Her dissertation centred on  and earned her a Vanier Canada Graduate Scholarship in 2016.

*Followed by FAMMED Lingo: To learn about your peers’ culture & practice the languages you’ve always wanted to learn! (from 4 to 6 p.m.). Please note that you must register beforehand by clicking .Ìý
**Beer will be sold 1$ each.Ìý

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