Â鶹AV

Informed Consent

Facilitator: Erika Kleiderman,LL.B., Academic Associate, Centre of Genomics and Policy, Â鶹AV

General overview of the principles, policies and laws that govern the crucial ins and outs of the consent process.

Webinar: N/A

Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council Canada, Social Sciences and Humanities Research Council of Canada, and Interagency Secretariat on Research Ethics (Canada).ÌýTri-Council Policy Statement: Ethical Conduct for Research Involving Humans. Ottawa: Interagency Secretariat on Research Ethics, 2010.

Chapter 3 (The Consent Process), art. 3.1-3.12; p. 28-45
Chapter 4 (Fairness and Equity in Research Participation), art. 4.7; p. 52
Chapter 5 (Privacy and Confidentiality), art. 5.5-5.6; p. 62-64
Chapter 11 (Clinical Trials), art. 11.5-11.6; p. 158-159
Chapter 12 (Human Biological Materials Including Materials Related to Human Reproduction), art. 12.3-12.4; p. 173-175
Chapter 13 (Human Genetic Research), art. 13.5-13.6; p. 184-185

Avard, Denise, et al. "Best Practices for Health Research involving Children and Adolescents" (2012).

Privacy and Confidentiality

Facilitator: Adrian Thorogood, LL.B./B.C.L.
Academic Associate, Centre of Genomics and Policy, Â鶹AV

Research participants have wide-ranging interests in the protection of privacy, and researchers have corresponding duties to responsibly handle participant’s personal information. This workshop will identify researchers’ legal and ethical obligations concerning the collection, storage, use, and disclosure of personal information, as well as participant recruitment and re-contact. The workshop will also provide researchers with tools and insights for handling privacy concerns in the age of high throughput sequencing and imaging, cloud computing, mobile health, international collaborations, and widespread data sharing. ÌýÌý

Webinar: N/A

Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council Canada, Social Sciences and Humanities Research Council of Canada, and Interagency Secretariat on Research Ethics (Canada).ÌýTri-Council Policy Statement: Ethical Conduct for Research Involving Humans. Ottawa: Interagency Secretariat on Research Ethics, 2010.

Chapter 5 (Privacy and Confidentiality), art. 5.1-5.7; p. 55-65
Chapter 9 (Research involving the First Nations, Inuit and Métis Peoples of Canada), art. 9.16, 9.21-9.22; p. 126-128, 131-132
Chapter 10 (Qualitative Research), art. 10.4; p. 143-144
Chapter 11 (Clinical Trials), art. 11.7; p. 159-161

Commercialization

Commercialization, intellectual property, and public-private partnerships within research will be explored during this interactive workshop. An overview will be given of the current situation and context within Quebec and Canada, as well as its potential future direction.

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Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council Canada, Social Sciences and Humanities Research Council of Canada, and Interagency Secretariat on Research Ethics (Canada).ÌýTri-Council Policy Statement: Ethical Conduct for Research Involving Humans. Ottawa: Interagency Secretariat on Research Ethics, 2010.

Chapter 9 (Research involving the First Nations, Inuit and Métis Peoples of Canada), art.9.18; p. 133-134
Chapter 12 (Human Biological Materials Including Materials Related to Human Reproduction), art. 12.6; p. 183-184
Chapter 13 (Human Genetic Research), art. 13.7; p. 198

Research Integrity
Facilitator: Amy Pack, LL.M. Academic Associate, Centre of Genomics and Policy, Â鶹AV

How familiar are you with general research integrity matters? Do you find yourself in situations you wish you could rely on ethical expertise? This interactive workshop will provide you with an overview of the core principles that govern research integrity. It will also outline researcher obligations and responsibilities, as well as the ethical and legal issues that surround them.

Webinar:

Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council Canada, Social Sciences and Humanities Research Council of Canada, and Interagency Secretariat on Research Ethics (Canada).ÌýTri-Council Policy Statement: Ethical Conduct for Research Involving Humans. Ottawa: Interagency Secretariat on Research Ethics, 2010.

Chapter 1 (Ethics Framework), art. 1.1; p. 6-11
Chapter 3 (The Consent Process), art. 3.1; p. 26-28
Chapter 4 (Fairness and Equity in Research Participation), p. 49-55Ìý
Chapter 9 (Research involving the First Nations, Inuit and Métis Peoples of Canada), art. 9.1; p. 114-115Ìý
Chapter 13 (Human Genetic Research), art. 13.1; p. 193-194

Authorship
Faciltator: Ma'n H. Zawati, LL.M., Executive Director, Centre of Genomics and Policy, Â鶹AV

Will you be submitting an article to a journal sometime soon? Was determining authorship a very difficult task for you? Not sure if your colleague who helped you critically revise your article should be given authorship or simply acknowledged? Does contributing the data and analyzing it enough to earn someone a co-authorship? Increasingly, publications involve multiple collaborators taking on varying roles throughout a research project. Such involvement can sometimes lead to improper authorship attribution. This interactive workshop aims at addressing what constitutes proper authorship through a review of existing national guidelines and policies on the matter.

Webinar: Coming Soon - March 2017

Coming Soon - March 2017

Data Sharing Policy
Faciltator: Stephanie Dyke, Ph.D., Academic Associate, Centre of Genomics and Policy, Â鶹AV

Researchers, funders, universities, governments, all seem to be talking about more data sharing. This interactive workshop aims to clarify current funding requirements for data sharing in research and to explore best data sharing practices in a range of research disciplines. Developments in Open Access publication policy will also be discussed.

°Â±ð²ú¾±²Ô²¹°ù:ÌýComing Soon - April 2017

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